Joseph and I wanted to start this group so that we can keep everyone updated on the status of our fighting Isaiah. This is going to be a long journey, but we trust with Gods will and all of your support, love, and prayers, we will make it through this together. And come out with a strong healthy boy that will lead a long and full life.
Please don't hesitate to ask any questions during these next few months. We will do our best to keep this page updated every step of the way.
On Thursday, September 8th 2011 we went into the Dr to find out the gender of the baby. We soon found out that we were having a baby boy. Of course Joseph and I were thrilled with this news, but either way it went, we just prayed for a healthy baby. Our little guy was being very active, so it was hard for the ultrasound tech to get a good image of his chest and other vital organs. We were told to come back on Thursday September 15th for better images. So I told Joseph not to worry about coming, since he likes to make it to all appointments.
Thursday the 15th came around and I was beside myself to get to see our little guy again. He has always been so active whenever he is on the big screen! Little did I know that the Dr was really looking for the signs of RCDH (Right-Sided Congenital Diaphragmatic Hernia). Almost 2 hours later, she diagnosed him with this and 10 minutes later I was up on the table getting an amniocentesis.
I was so overwhelmed and an emotional wreck that what the Dr was saying was going way over my head, until she mentioned termination of the fetus. My heart sunk.
I got home that night, called Joseph home from work, and we immediately started doing research, reading forums, posts, and trying to educate ourselves as best as possible. We both agreed that termination was absolutely out of the question.
We found out that RCDH is only 2% of the 2500 cases a year, the other being left sided of course. CDH is as common as spinal bifida and cystic fibrosis yet there is minimal information or tests to detail what the cause for CDH is. For more information on CDH please go to: http://fetus.ucsfmedicalcenter.org/cdh/
This link will take you to UCSF (University of California, San Francisco). This is the hospital that we are going to be visiting in the next couple of weeks for a day full of testing.
At the present time we know that Isaiah's small intestine and liver are forming in his chest cavity and his heart is pushed all the way to his left side. The Dr. was unable to see the diaphragm so was unsure of whether the stomach was in his chest but could determine that is was below the heart.
At this time we are unsure of all of our options or what plan of action we have, so please keep us in your prayers and we will keep you all updated. We did find out today the chromosome test came back normal so there’s one small victory in a war with many more battles.
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